We believed that, after a year of chemotherapy at the clinic in Vienna, followed by one year of treatment in Romania, completed with very good test results, everything would end well. Tessa had been diagnosed in 2012 with acute lymphoblastic leukemia. In July 2014, doctors have agreed that Tessa should enjoy again all her age appropriate activities. And things seemed to get back to normal. Tessa enrolled in school and began preparatory class in September, full of enthusiasm.
Less than three months after the end of the maintenance therapy (involving daily chemotherapy in small doses), Tessa had a little cold and was absent from school, then she started complaining of severe and atypical headaches. We immediately had her done a full set of blood and exudate, without finding any worrying sign. We then performed an emergency MRI in Romania, which showed a sinusitis that seemed to explain the headaches. Because the first post-treatment clinical investigation was near, we went to Vienna for a routine check. Here again, the blood tests were good, EEG, EKG and ultrasound did not report any problems and Tessa was preparing for departure. Then, suddenly, three hours before the flight departure, we were called back at the emergency clinic for further investigation. At a molecular biopsy, they had found atypical blood cells. Immediately, they performed the lumbar and bone marrow punctures and in two hours the verdict that we were so afraid of was given: the illness had returned. And, again, in one second, we were locked in a hospital room, tied to a wire with poisons.
Currently, Tessa has finished the first intensive treatment unit, which lasted seven days, meaning that she has received many drugs every single day, including two spine punctures injecting the chemotherapy directly into the cerebrospinal fluid (intrathecal). In addition to the physical side effects, the psychological ones have been ravishing. Tessa hardly recovered from the initial shock. It helped us a lot to sleep one night outside the hospital, it gave her confidence again in us and the doctors.
We were praying and hoping not to get here, the risks of the treatment are much higher, but the chances of cure would also increase to 80% after transplant, according to the doctors’ prognosis. The transplant is considered mandatory according to the latest treatment protocols for the rare cases of isolated early recovery in the Central Nervous System. If the relapse had been diagnosed in the bone marrow, the chances of recovery would have been much lower. Without the transplant, the chances for Tessa’s healing would be significantly smaller and the danger of a new relapse would increase.
After the first donations received and the money we got by selling some properties and things, currently we still have in our accounts about 40,000 euros. We took great care of the money, which helped us cover all the expenses required for the two years of treatment until now (drugs, tests, secondary treatments done other clinics, plane tickets).
… We were going to donate to others the remaining amount … ..
We were very lucky to urgently get the E112 / S2 form for the first part of the treatment. The form obtained now covers only the costs for the preparatory chemotherapy treatment for transplant, not also the secondary treatment or medicines, which will have to be acquired by us. Also, and most important, the form does not cover the costs related to the transplant procedure.
The transplant procedure itself costs about 50,000 euros, to which we’ll also have to add the hospitalization costs for every day required after doing the procedure, amounting to 1,079 euro / day. We will also have to pay the costs for the sessions of radiotherapy and the subsequent care expenses related to testing and finding a suitable donor for transplant.
Based on all the estimations received so far, we will need 120,000 euros to carry out the treatment. From this total amount, currently we only have, as mentioned before, 40,000 euros. Please help us by sending this message to as many people as possible, in order to try to get the needed money for the terminating the treatment.
“God rarely shows future, and usually for one reason only: if it is a future that was written to be changed.”
Paulo Coelho, “The Alchemist”
Thank you very much everyone!
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